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Communication Disorders Quarterly
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Parents' Experiences With Childhood Deafness

Implications for Family-Centered Services

Carla Wood Jackson

Florida State University, Tallahassee, cjackson3{at}fsu.edu

Randi J. Traub

Florida State University, Tallahassee

Ann P. Turnbull

Beach Center on Disability, University of Kansas, Lawrence

In response to the need for family-centered follow-up, this study examined parents' experiences with deafness after early identification. Qualitative inquiry methods were used to explore and describe the perceptions and experiences of nine parents of children identified with severe to profound deafness. Parents participated in face-to-face conversations and interviews by phone and e-mail. Naturalistic inquiry methods were used to identify themes in family experiences including reactions to diagnosis; decision making; impact of deafness on family interactions, family time, and the child; positive experiences in early intervention; and desired support services. Implications and recommendations for early intervention programs are discussed.

Key Words: deafness • family life • family-centered services • family-professional partnerships • early intervention • qualitative inquiry • support services

Communication Disorders Quarterly, Vol. 29, No. 2, 82-98 (2008)
DOI: 10.1177/1525740108314865
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